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Organizations

Home > Diseases and Conditions > Organizations

Patient Organization for Primary Immune Deficiencies (IPOPI)
chat, conferencing, member organizations around the world, great resources on the various immune deficiency diseases.
http://www.ipopi.org/

Pituitary Tumor Network Association
dedicated to support, pursue, encourage, promote, and, where possible, fund research on pituitary tumors in a sustained and full-time effort to find a cure for pituitary diseases.
http://www.pituitary.com/

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
interdisciplinary association for the advancement of rehabilitation and assistive technologies.
http://www.resna.org/

Society for Light Treatment and Biological Rhytms - SLTBR
dedicated to fostering research, professional development, and clinical applications in the fields of light therapy and biological rhythms.
http://www.sltbr.org/

Stevens Johnson Syndrome Foundation
provides medical communities and the public with information and support.
http://www.stevensjohnsonsyndrome.net/

Tourette Syndrome Association of New Jersey, Inc.
offering information and support groups.
http://www.tsanj.org/

Transverse Myelitis Association
not-for-profit organization providing support to families affected by TM.
http://www.myelitis.org/

Wobblers Anonymouse
support group for those damaged by gentamicin. Symptoms include oscillopsia and loss of balance.
http://www.wobblers.com/

Worldwide Society of Wolfram Syndrome Families
support group for a rare disease.
http://www.wolframsyndrome.org/