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Organizations

Home > Diseases and Conditions > Organizations

Klippel-Trenaunay Support Group
provides information about the group and about syndrome, and to provide families, adults with K-T, and professionals with links.
http://www.k-t.org/

Langer-Giedion Syndrome Association
international support organization for people and families living with Langer-Giedion Syndrome and related disorders.
http://lgsa.net/

Lois Joy Galler Foundation
acquires the funds needed to conduct research and develop methods of preventing or curing Hemolytic Uremic Syndrome (HUS).
http://www.loisjoygaller.org/

Magic Foundation
provides support services for the families of children afflicted with chronic and/or critical disorders, syndromes, and diseases that affect a child's growth.
http://www.magicfoundation.org/

Medsupport: Friends Supporting Friends
provides 24 hr. support on the net via forums, chats, information, newsletters and articles in text and real audio, pen pals, members stories, and our own television show.
http://www.medsupport.org/

The Melungeon Health Education and Support Network
Dedicated to the health of Melungeon descendants who have one or more of the five major Mediterranean illnesses, including Behçet's Syndrome and Sarcoidosis.
http://www.melungeonhealth.org/

Mia Hamm Foundation
supporting research of bone marrow diseases.
http://www.miafoundation.org/

Myoclonus Research Foundation

http://www.myoclonus.com/

National Aphasia Association
aphasia is an impairment of the ability to use or comprehend words - often a result of stroke or head injury.
http://www.aphasia.org/

National Association for Down Syndrome (NADS)
news, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
http://www.nads.org/