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Fatty Oxidation Disorders
Informational site provides details on newborn screening, on numerous diseases, medical information and support resources such as a newsletter and email List.
http://www.fodsupport.org/
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The Noonan Syndrome Support Group
Information about this organization as well the disease itself. Offers news, events, a survey, a newsletter and further resources.
http://www.noonansyndrome.org/
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Robinow Syndrome Foundation
Details about the organization as well as the disease. Includes general information, a survey, newsletter and photos.
http://www.robinow.org/
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Costello Kids
Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links.
http://www.costellokids.co.uk/
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Joubert Syndrome Foundation
Organization, conferences and contact details. FAQs about the disease, information center and resources.
http://www.joubertfoundation.com/
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Alagille Syndrome Alliance
Worldwide support network for people who care about people with alagille syndrome.
http://www.alagille.org/
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The Alkaptonuria Society
An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources.
http://www.alkaptonuria.info/
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Gene Clinics
Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.
http://www.geneclinics.org
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Your Genes, Your Health
The DNA Learning Center's multimedia guide to genetic disorders. Complete in depth articles about each disease listed.
http://www.ygyh.org
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